01A.08 · Mucoviscidose VIII — adolescence, fertilité et vie adulte

Cystic fibrosis VIII — adolescence, fertility and adult life

Cystic fibrosis series · 51 pages

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Chronic Disease: Cystic Fibrosis

1Chronic Disease: Cystic Fibrosis 2Lecture Overview 3Outline — Part 1

A. Definition of Adolescence

4What Is Adolescence?5Visual Metaphor — Storm 6Visual Metaphor — Explosion 7WHO Definition and Age Range 8Four Developmental Dimensions 9Physical Processes — Puberty 10Adolescent Brain Map — Transition 11Psychological Processes 12Early Adolescence 13Mid-Adolescence — Individuation 14Late Adolescence — Future Plans 15Kestemberg Quote — Adolescent Crisis

B. Impact on the Patient

16B. Impact on the Patient 17Developmental Conflicts in CF 18Developmental Risks 19Improving CF Life Expectancy 20Schooling and Vocational Training 21Schooling — Psychological Barriers 22Psychiatric Morbidity — PTSD and Depression

C. Impact on the Parents

23C. Impact on the Parents 24Family Stress and Psychiatric Comorbidity

D. Protective Factors

25D. Protective Factors 26Positive Attachment and Spiritual Adaptation 27Proust Quote — Learning in Adolescence

28Recommended Videos 29Film — Blue My Mind 30Recommended Reading — Jacquin 2011

31Systemic Aspects — Part 2 Title 32Systemic Aspects — Part 2 Outline

Affective Life and Fertility

33CF and Affective Life 34Male Reproductive Impairment 35Female Reproductive Impairment

Pregnancy and CF

36Pregnancy — Overview and Outcomes 37Maternal Risk Factors 38Newborn Risks

Disease Screening

39Antenatal Screening — Methods 40Antenatal Screening — Limitations 41Neonatal Screening — Goal 42Neonatal Screening — Criteria 43Neonatal Screening in Switzerland 44Neonatal Screening — IRT and Mutations 45Screening Test Quality — Sensitivity and Specificity 46Screening Benefits and Caveats

47Pediatric — Disability Insurance 48Pediatric — Additional Supports 49Adult — Insurance and AI Pension 50Adult — Helplessness and Intensive Care Allowances

51Conclusion — Multidisciplinary Care

01A.08Page 1Chronic Disease: Cystic Fibrosis

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 1

01A.08Page 2Chronic Disease: Cystic FibrosisLecture Overview

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 2

01A.08Page 3Chronic Disease: Cystic FibrosisOutline — Part 1

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 3

01A.08Page 4Chronic Disease: Cystic FibrosisA. Definition of AdolescenceWhat Is Adolescence?

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 4

01A.08Page 5Chronic Disease: Cystic FibrosisA. Definition of AdolescenceVisual Metaphor — Storm

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 5

01A.08Page 6Chronic Disease: Cystic FibrosisA. Definition of AdolescenceVisual Metaphor — Explosion

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 6

01A.08Page 7Chronic Disease: Cystic FibrosisA. Definition of AdolescenceWHO Definition and Age Range

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 7

01A.08Page 8Chronic Disease: Cystic FibrosisA. Definition of AdolescenceFour Developmental Dimensions

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 8

01A.08Page 9Chronic Disease: Cystic FibrosisA. Definition of AdolescencePhysical Processes — Puberty

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 9

01A.08Page 10Chronic Disease: Cystic FibrosisA. Definition of AdolescenceAdolescent Brain Map — Transition

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 10

01A.08Page 11Chronic Disease: Cystic FibrosisA. Definition of AdolescencePsychological Processes

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 11

01A.08Page 12Chronic Disease: Cystic FibrosisA. Definition of AdolescenceEarly Adolescence

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 12

01A.08Page 13Chronic Disease: Cystic FibrosisA. Definition of AdolescenceMid-Adolescence — Individuation

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 13

01A.08Page 14Chronic Disease: Cystic FibrosisA. Definition of AdolescenceLate Adolescence — Future Plans

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 14

01A.08Page 15Chronic Disease: Cystic FibrosisA. Definition of AdolescenceKestemberg Quote — Adolescent Crisis

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 15

01A.08Page 16Chronic Disease: Cystic FibrosisB. Impact on the Patient

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 16

01A.08Page 17Chronic Disease: Cystic FibrosisB. Impact on the PatientDevelopmental Conflicts in CF

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 17

01A.08Page 18Chronic Disease: Cystic FibrosisB. Impact on the PatientDevelopmental Risks

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 18

01A.08Page 19Chronic Disease: Cystic FibrosisB. Impact on the PatientImproving CF Life Expectancy

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 19

01A.08Page 20Chronic Disease: Cystic FibrosisB. Impact on the PatientSchooling and Vocational Training

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 20

01A.08Page 21Chronic Disease: Cystic FibrosisB. Impact on the PatientSchooling — Psychological Barriers

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 21

01A.08Page 22Chronic Disease: Cystic FibrosisB. Impact on the PatientPsychiatric Morbidity — PTSD and Depression

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 22

01A.08Page 23Chronic Disease: Cystic FibrosisC. Impact on the Parents

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 23

01A.08Page 24Chronic Disease: Cystic FibrosisC. Impact on the ParentsFamily Stress and Psychiatric Comorbidity

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 24

01A.08Page 25Chronic Disease: Cystic FibrosisD. Protective Factors

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 25

01A.08Page 26Chronic Disease: Cystic FibrosisD. Protective FactorsPositive Attachment and Spiritual Adaptation

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 26

01A.08Page 27Chronic Disease: Cystic FibrosisD. Protective FactorsProust Quote — Learning in Adolescence

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 27

01A.08Page 28Chronic Disease: Cystic FibrosisResourcesRecommended Videos

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 28

01A.08Page 29Chronic Disease: Cystic FibrosisResourcesFilm — Blue My Mind

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 29

01A.08Page 30Chronic Disease: Cystic FibrosisResourcesRecommended Reading — Jacquin 2011

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 30

01A.08Page 31Chronic Disease: Cystic FibrosisSystemic Aspects — Part 2 Title

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 31

01A.08Page 32Chronic Disease: Cystic FibrosisSystemic Aspects — Part 2 Outline

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 32

01A.08Page 33Chronic Disease: Cystic FibrosisAffective Life and FertilityCF and Affective Life

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 33

01A.08Page 34Chronic Disease: Cystic FibrosisAffective Life and FertilityMale Reproductive Impairment

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 34

01A.08Page 35Chronic Disease: Cystic FibrosisAffective Life and FertilityFemale Reproductive Impairment

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 35

01A.08Page 36Chronic Disease: Cystic FibrosisPregnancy and CFPregnancy — Overview and Outcomes

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 36

01A.08Page 37Chronic Disease: Cystic FibrosisPregnancy and CFMaternal Risk Factors

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 37

01A.08Page 38Chronic Disease: Cystic FibrosisPregnancy and CFNewborn Risks

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 38

01A.08Page 39Chronic Disease: Cystic FibrosisDisease ScreeningAntenatal Screening — Methods

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 39

01A.08Page 40Chronic Disease: Cystic FibrosisDisease ScreeningAntenatal Screening — Limitations

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 40

01A.08Page 41Chronic Disease: Cystic FibrosisDisease ScreeningNeonatal Screening — Goal

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 41

01A.08Page 42Chronic Disease: Cystic FibrosisDisease ScreeningNeonatal Screening — Criteria

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 42

01A.08Page 43Chronic Disease: Cystic FibrosisDisease ScreeningNeonatal Screening in Switzerland

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 43

01A.08Page 44Chronic Disease: Cystic FibrosisDisease ScreeningNeonatal Screening — IRT and Mutations

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 44

01A.08Page 45Chronic Disease: Cystic FibrosisDisease ScreeningScreening Test Quality — Sensitivity and Specificity

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 45

01A.08Page 46Chronic Disease: Cystic FibrosisDisease ScreeningScreening Benefits and Caveats

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 46

01A.08Page 47Chronic Disease: Cystic FibrosisSocial CarePediatric — Disability Insurance

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 47

01A.08Page 48Chronic Disease: Cystic FibrosisSocial CarePediatric — Additional Supports

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 48

01A.08Page 49Chronic Disease: Cystic FibrosisSocial CareAdult — Insurance and AI Pension

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 49

01A.08Page 50Chronic Disease: Cystic FibrosisSocial CareAdult — Helplessness and Intensive Care Allowances

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 50

01A.08Page 51Chronic Disease: Cystic FibrosisConclusion — Multidisciplinary Care

Mucoviscidose VIII — adolescence, fertilité et vie adulte page 51